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How to handle informed consent in longitudinal studies ...


Self-Assessed Understanding as a Tool for Evaluating Consent - jstor

How to handle informed consent in longitudinal studies when participants have a limited understanding of the study. J Med Ethics 2005;11:670-3. 20. Flory J ...

A novel metadata management model to capture consent for record ...

Background: Informed consent is an important feature of longitudinal research studies as it enables the linking of the baseline participant ...

A qualitative study of participants' views on re-consent in a ...

These longitudinal projects complicate traditional forms of consent to research that have tended (in practice at least) to treat consent as one- ...

(PDF) Information and informed consent in a longitudinal screening ...

Two questions evoked by our results are: (1) what information is required for participants in longitudinal studies involving children? and (2) how do we ensure ...

Children, Longitudinal Studies, and Informed Consent | Semantic ...

Ethical issues of particular relevance to longitudinal research involving children, focusing on issues concerning information and consent procedures in ...

Longitudinal Study of Informed Consent in Innovative Therapy ...

There is an urgent need to assess and improve the consent process in clinical trials of innovative therapies for neurodegenerative disorders. Methods. We ...

Why are ethical considerations in longitudinal studies unique?

For instance, the issue of informed consent becomes more complex. At the outset of the study, participants may agree to the terms and conditions, but as the ...

adjusting formal procedure as a means of enhancing reflexivity in ...

Relevant to the research on intimacy is ensuring informed consent throughout the duration of a longitudinal project. The argument being made is that ...

Guidelines for an Informed Consent Form - Lone Star College

Longitudinal Study: If you are conducting a longitudinal study, you must inform the participant about all planned data collection. You must state that ...

Ethical Issues in Longitudinal Research with At-Risk Children and ...

This case discusses issues of researcher obligations, the role of informed consent, developmental factors; and options of action available to researchers.

Understanding Informed Consent in Research - Dovetail

The informed consent process · Giving prospective subjects information about the research, what it requires of them, and how the terms will or ...

Understanding data linkage consent in longitudinal surveys

In many countries survey data can only be linked to administrative or other process-generated data if survey respondents give informed consent to the linkage.

When Vulnerable Populations Are Subjects in Pragmatic Trials

• Consent: Researchers obtained surrogate permission and assent ... An investigator seeks informed consent from an individual who lacks ...

Informed Consent | IRB | Research - Boston Children's Hospital

The “key information” that a subject will need to decide whether to enroll in a Phase II Clinical Trial will be different from the “key information” needed to ...

Ethical Issues in Longitudinal Surveys - Wiley Online Library

based on particular aspects of the longitudinal survey research process ... In the great majority of longitudinal studies, however, informed consent must be ...

Informed Consent - Qualitative Data Repository - Syracuse University

You should obtain participants' explicit consent with regard to each process that you describe before beginning to collect information. Confirming that ...

Ethics and Qualitative Longitudinal Research: A special case?

▻ Informed consent in the context of QL is not a one-off event, but a process, with continuous consultation necessary throughout all phases of the research,.

Confidentiality & Informed Consent - National Longitudinal Surveys

Survey Procedures; Data Handling. OMB Procedures and Federal Laws. OMB Procedures. The Office of Management and Budget (OMB) is responsible for setting overall ...

FAQs and Vignettes | NSF - National Science Foundation

"An agreement to participate in research constitutes a valid consent only if voluntarily given. This element of informed consent requires conditions free of ...

Participant engagement in longitudinal studies

Young people wanted a sense of control over the research by being informed. ▫ Young people felt signing consent could make the process overly ...