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Patient Registry


What is a Patient Registry? - Dataplus-Research.com

A patient registry specifically refers to information collected from individuals or patients centered on their health condition and diagnosis.

Patient Stratification | Arcadia Patient Registry

Simplify patient stratification and outreach. Arcadia Patient Registry allows health systems and their providers to build a comprehensive list of patients with ...

Medical Marijuana Registry patients

You can access your most recent provider certification from your online account. If you need more help, contact the Medical Marijuana Registry.

Registry Login / Division of Medical Cannabis - Minnesota.gov

Medical Cannabis Registry. NOTE FOR NEW PATIENTS: You will enroll in the Medical Cannabis Program through an email link sent from the Office of Medical ...

NPF Patient Registry - National Pancreas Foundation

The Patient Registry is closing and the NPF will retain secured data collected for research purposes. Patients who have created registry ...

Patient registries: A catalyst for developing new therapies for rare ...

Patient registries are powerful tools for collecting information about a variety of conditions or therapies. Observational patient registries may be ...

Leigh Syndrome Patient Registry - Cure Mito Foundation

”Cure Mito Foundation's Leigh syndrome global patient registry is foundational – it will catalyze basic research while also helping to get medicines approved by ...

Improving Outcomes Through Patient Registries - HSS

Patient registries are enabling clinicians to examine a broad spectrum of musculoskeletal conditions and treatments, from autoimmune diseases to progressive ...

Rare Disease Registry | Sanford Research

Based at Sanford Research, a nonprofit research institution, CoRDS is a centralized international patient registry for all rare diseases. We coordinate the ...

Patient Services - Pancreatic Cancer Action Network

... patient. Connect one-on-one, or explore support groups. LEARN ... Patient Registry Support Groups Survivor & Caregiver Network For Healthcare Professionals.

mitoSHARE Registry - UMDF

The goal of the registry is to advance scientific research using data gathered from patients and families affected by mitochondrial disease. With every new ...

Registries for Collaborative Care - AIMS Center

... patient care using a caseload management registry in conjunction with the practice's electronic health record (EHR). Learn more about CoCM registries below.

Registry of Patient Registries - HHS.gov

Registry of Patient Registries (RoPR) gets its data from records classified as 'patient registry' on. ClinicalTrials.gov. In addition, ...

Medical Marijuana Program

Welcome to the Arkansas Medical Marijuana Patient Registry System. If you are an EXISTING ONLINE PATIENT, click Login button.

Iowa Neurological Patient Registry | The University of Iowa

Information about the Iowa Neurological Patient Registry (nicknamed the Iowa Lesion Registry) and its neuroscience, psychology, and neuropsychology research ...

Patient Registry | The Life Raft Group

The LRG Patient Registry is an ongoing research study where GIST patients and caregivers from all over the world volunteer their information ...

Transforming a Patient Registry Into a Customized Data Set for the ...

Background: Hospital patient registries provide substantial longitudinal data sets describing the clinical and medical health statuses of ...

What is a Patient Registry? - Lipedema Foundation

A patient registry is a survey that gathers information about a population with a disease, syndrome, or condition, like Lipedema.

Planning a Patient Registry - YouTube

Good planning is essential for the success of a registry. The decisions made during the planning phase have an impact on registry design, ...

Trauma Data Registry | Health & Human Services

Iowa's Trauma Registry. Iowa HHS hosts a statewide trauma patient registry. The registry is a web-based system used to collect specific information about ...


Disease registry

Disease or patient registries are collections of secondary data related to patients with a specific diagnosis, condition, or procedure, and they play an important role in post marketing surveillance of pharmaceuticals.