A Novel Patient|Reported Outcome Measure in IgG4|Related Disease

A Novel Patient-Reported Outcome Measure in IgG4-Related Disease

We sought to develop and validate the Symptom Severity Index (SSI), a PROM that measures the frequency of IgG4-RD-specific symptoms and associated distress.

Assessment of patient-reported symptoms and distress in IgG4 ...

Objective: IgG4-related disease (IgG4-RD), a multi-organ autoimmune disease, causes diverse manifestations that can lead to symptoms and distress. We developed ...

Assessment of patient-reported symptoms and distress in IgG4 ...

IgG4-related disease (IgG4-RD), a multi-organ autoimmune disease, causes diverse manifestations that can lead to symptoms and distress. We developed and ...

Assessment of patient-reported symptoms and distress in IgG4 ...

Keywords: IgG4-Related Disease, Symptom Burden, Patient Reported Outcomes ... develop and validate a novel patient-reported outcome measure, incorporating patient.

Development of an IgG4-RD Responder Index - PMC

The current iteration of the IgG4-RD RI marks an important step toward the availability of useful outcome measures in this disease. We ...

Current and future advances in practice: IgG4-related disease

The diagnosis of IgG4-RD requires clinicopathological correlation because there is no highly specific or sensitive test. Glucocorticoids are ...

Development of a novel patient-reported outcome measure to ...

Given the urgent need for vaccines and treatments for coronavirus disease 2019 (COVID-19), the Symptoms of Infection with Coronavirus-19 ...

Development and validation of a patient-reported outcome measure ...

The total ScleroID score showed strong Pearson correlation coefficients with comparators (SSc-HAQ, 0.73; Patient's global assessment, Visual Analogue Scale 0.77 ...

Development of a Novel Patient-Reported Outcome Measure to ...

Although health-related quality of life (HRQoL) instruments are available to evaluate both the impact of the disease and its treatments, these ...

Novel patient-reported outcome measure in FCS - Dove Medical Press

Background: Familial chylomicronemia syndrome (FCS) is a rare metabolic disorder that impacts physical, emotional, social, and cognitive ...

Patient reported outcome measures in rare diseases: a narrative ...

... related quality of life (HRQoL) [16]. PROMs are generally characterized as generic or disease-specific measures. Generic measures are ...

Retrospective single-centre analysis of IgG4-related disease patient ...

The aim was to gain a better understanding of the prevalence, organ involvement, clinical characteristics and long-term outcomes of medical and surgical ...

Journal of Patient-Reported Outcomes: Home

... disease and health-related quality of life (HRQL). Far less is known about ... patient-reported outcome measures in patients with late-onset Pompe disease.

Friedreich Ataxia Caregiver-Reported Health Index - Neurology.org

The FACR-HI was designed to measure total disease burden and disease burden in 18 symptomatic domains. The FACR-HI total score demonstrated high ...

A Novel Qualitative Study Assessing Patient-Reported Outcome ...

Patient-reported outcome measures (PROMs) are used to capture patient perspectives in disease assessment ... related (50.8%), and patient ...

Why a clinical trial is as good as its outcome measure: A framework ...

... patient reported outcome measures. The field of AD and related dementias can learn from these precedents. 3.2 Composite outcome measures.

Patient-Centered Outcome Measures Initiatives in the Field of Rare ...

physical manifestations thought to be related to a disease or condition. ... Patient- and Observer-Reported Outcomes Measurement in Rare Disease Clinical Trials -.

Patient-reported outcome measures after COVID-19: a prospective ...

Of the patients without any Charlson comorbidities, 70% had an abnormal PROM and 33% reported at least a moderate problem in one or more EQ-5D-5L dimensions. A ...

Development and validation of a novel Barrett's oesophagus patient ...

One area of gastroenterology where a validated disease-specific patient reported outcome measure (PROM) has not yet been developed is Barrett's oesophagus (BO).

Patient-Reported Outcome Measures in Neuromuscular Diseases

This scoping review aimed to present a comprehensive assessment of the existing literature on using PROMs in children and adults with NMD.