ADPKD Patient Perspective

Autosomal dominant polycystic kidney disease (ADPKD) is the most common inherited kidney disease. It has been associated with a significant physical and ...

Patient Perspectives on ADPKD

The purpose of this literature review is to summarize the patient perspective on ADPKD based on the current published literature.

In this video, Ann Bartels talks about the financial, emotional, and physical difficulties of having PKD, and her hopes for finding a cure with the help of the ...

Review Article Patient Perspectives on ADPKD - ScienceDirect.com

The aim of this review is to explore the published perspectives of adults with ADPKD regarding their experience of their condition and health care needs.

Patient perspectives - PKD Foundation

Patient perspectives. These videos were produced by Otsuka America Pharmaceutical, Inc., in collaboration with the PKD Foundation. — Birkley family. My ADPKD ...

A Patient Perspective on Genetic Testing for ADPKD - PubMed

A Patient Perspective on Genetic Testing for ADPKD: The Lack of Complete Genetic Information, Especially Early in the Course of the Disease, ...

A painful inheritance—patient perspectives on living with polycystic ...

The erratic onset of pain contributes to the substantial unpredictability of daily living and prevents patients from establishing long-term life goals.

A Patient Perspective on Genetic Testing for ADPKD

The lack of complete genetic information, especially early in the course of the disease, is harming adult autosomal dominant polycystic kidney disease (ADPKD) ...

Patient Perspectives on ADPKD

The purpose of this literature review is to summarize the patient perspective on ADPKD based on the current published literature. A systematic literature review ...

Perspectives of Patients and Clinicians on Reproductive Health ...

ADPKD, autosomal dominant polycystic kidney disease. Prepregnancy, During pregnancy, Post pregnancy. Timely information. Patients ...

ADPKD Patient Perspectives: What Toll Does Uncertainty Take?

Pain, discomfort, fatigue, and weakness have been seen at all stages of ADPKD, leaving psychological and social impacts. Because such symptoms ...

Perspectives of Patients and Clinicians on Reproductive Health ...

One clinician noted that reproductive care for patients with ADPKD is a multidisciplinary problem and recommended establishing a platform for dialogue with a ...

'A sword of Damocles': patient and caregiver beliefs ... - BMJ Open

Conclusions For patients with ADPKD, presymptomatic testing provides an opportunity to take ownership of their health through family planning and preventive ...

An Objective Pain Assessment for Autosomal Dominant Polycyst...

The Autosomal Dominant Polycystic Kidney Disease Pain and Discomfort Scale (ADPKD-PDS) is a tool developed by a team of experts in collaboration with patient ...

Patient perspectives on ADPKD - White Rose Research Online

Autosomal dominant polycystic kidney disease (ADPKD) is the most common inherited kidney disease. It has been associated with a significant physical and ...

Living With Autosomal Dominant Polycystic Kidney Disease - YouTube

Autosomal Dominant Polycystic Kidney Disease (ADPKD) is a form of PKD ... Living With Autosomal Dominant Polycystic Kidney Disease: A Patient's ...

REPRISE: The Patient Perspective - NephJC

Tolvaptan in Later-Stage Autosomal Dominant Polycystic Kidney Disease (ADPKD): The Patient Point of View.

Registry Update | Powering a Cure - PKD Connect

... patient perspectives. Power in numbers. The Registry is the first North American database of patients with ADPKD and one of the first registries to integrate ...

ADPKD Patient Perspective - NephJC

While I am largely asymptomatic except for some suspected weight gain from my growing kidneys, the biggest challenge for me with PKD is the ...

2021 PKD Regulatory Summit: ADPKD Patient Story | Lainie Esquivel

2021 PKD Regulatory Summit: ADPKD Patient Story | Lainie Esquivel 151 views 3 years ago #kidneys #mom #wife