Adding dynamic consent to a longitudinal cohort study

Dynamic consent has been proposed as a process through which participants and patients can gain more control over how their data and samples ...

Adding dynamic consent to a longitudinal cohort study - PubMed

Trust in the study researchers was the strongest theme found. Openness and good data security were needed to retain their trust.

(PDF) Adding dynamic consent to a longitudinal cohort study

This research investigated the participants' opinions of adding a dynamic consent interface to their existing study. Methods Adult participants in the Extended ...

Adding dynamic consent to a longitudinal cohort study - PhilPapers

This research investigated the participants' opinions of adding a dynamic consent interface to their existing study. Methods Adult participants ...

Adding dynamic consent to a longitudinal cohort study: A qualitative ...

Dynamic consent has been proposed as a process through which participants and patients can gain more control over how their data and samples, donated for.

References in: Adding dynamic consent to a longitudinal cohort ...

Biobank research is potentially fruitful. It is argued that broad consent is acceptable for future research on biological material because a) the benefit is ...

Dynamic-informed consent: A potential solution for ethical dilemmas ...

It is oriented to support continuous two-way communication between researchers and participants. In this paper, we analyze the requirements of informed consent ...

Dynamic consent, communication and return of results in large-scale ...

We conducted a survey study to inquire how research participants evaluate the elements of consent, information provision, communication and return of results ...

Peer Review reports - BMC Medical Ethics - BioMed Central

Peer Review reports. From: Adding dynamic consent to a longitudinal cohort study: A qualitative study of EXCEED participant perspectives. Original Submission.

Reflections on dynamic consent in biomedical research: the story so ...

Dynamic consent (DC) was originally developed in response to challenges to the informed consent process presented by participants agreeing ...

Adding dynamic consent to a longitudinal cohort study: A ... - Altmetric

RT @ProfMiola: “Adding dynamic consent to a longitudinal cohort study: A qualitative study of EXCEED participant perspectives” by Susan Wal…

Dynamic consent, communication and return of results in large-scale ...

Dynamic consent forms a comprehensive, tailored approach for interacting with research participants. We conducted a survey study to inquire ...

Expanding the boundaries of previously obtained informed consent ...

... adding a dynamic consent interface to an existing longitudinal cohort study with healthy volunteers. ... cohort study: a qualitative study ...

'CTRL': an online, Dynamic Consent and participant engagement ...

Dynamic Consent also provides the opportunity for people to understand how their contribution to research supports knowledge discovery for ...

Dynamic consent: a royal road to research consent? - ResearchGate

Dynamic consent has been promoted as a promising alternative approach that could help patients and research participants regain control over the ...

Kun Li, Mingtao Huang, Xiaomei Zhai & Chen Wang, Ethical ...

... longitudinal and dynamic nature of such research ... Adding dynamic consent to a longitudinal cohort study: A qualitative study of EXCEED participant perspectives ...

Real-Time Dynamic Tiered e-Consent: A Novel Tool for Patients ...

Dynamic consent: participants are enrolled in their consent status monitoring and modification associated with research activities of biobanks ...

[PDF] Identifying facilitators of and barriers to the adoption of ...

Add to Library. Alert. 2 Excerpts. Adding dynamic consent to a longitudinal cohort study: A qualitative study of EXCEED participant perspectives · S. WallaceJ ...

Blockchain-Based Dynamic Consent and its Applications for Patient ...

Such has been suggested to facilitate ethical, compliant longitudinal research, and patient engagement. However, blockchain-based dynamic ...

Equitable Participation in Biobanks: The Risks and Benefits of a ...

Add to Library. Alert. Adding dynamic consent to a longitudinal cohort study: A qualitative study of EXCEED participant perspectives · S. WallaceJ. Miola.