Ethical Challenges and Dynamic Informed Consent

Ethical Challenges and Dynamic Informed Consent - SpringerLink

In developing dynamic informed consent, contact with research participants becomes easier. However, there is also a risk of consultation fatigue ...

Dynamic-informed consent: A potential solution for ethical dilemmas ...

In this paper, we analyze the requirements of informed consent in the context of population genomics, review various current implementations of dynamic consent.

Ethical Challenges and Dynamic Informed Consent - ResearchGate

Abstract · the right to erasure ('right to be forgotten'), means that data can no longer be stored · informed consent might be a sensible solution in the twenty ...

Ethical Challenges in Obtaining Informed Consent for Genetic ...

Obtaining informed consent (IC) for genetic/genomic research is complicated because most of the ethical issues associated with genetic ...

Dynamic Consent: a potential solution to some of the challenges of ...

Second, obtaining informed consent from research participants can be demanding. The objective of the informed consent process is to ensure that ...

Ethical Challenges and Dynamic Informed Consent

It sets out an overview of general ethical challenges in citizen science, from conceptual issues around social imbalances and power relations, to practical ...

Introducing dynamic consent for improved trust and privacy in ...

Dynamic-informed consent: a potential solution for ethical dilemmas in population ... “Ethical challenges and dynamic consent,” in The ...

Dynamic consent: a royal road to research consent?

Informed consent is a central principle of medical research ethics. But with the rise of biobanks and data infrastructures for medical research, the principle ...

Opportunities and challenges of a dynamic consent-based application

Appropriate safeguards and ethical considerations should be implemented to protect individuals' privacy in such cases. The fundamental basis of ...

Facilitators, Barriers to Implementing Dynamic Consent in Digital ...

Dynamic consent offers promise in addressing ethical concerns in digital health. However, it has not yet been widely used in clinical ...

Ten years of dynamic consent in the CHRIS study - Nature

Dynamic consent is an informed consent model which enables research participants to revise and change their choices on their participation in research over ...

Dynamic consent, communication and return of results in large-scale ...

... ethical and legal challenges. These challenges urge us to ... Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic ...

Dynamic-informed consent: A potential solution for ethical dilemmas ...

In: Computational and Structural Biotechnology Journal, Vol. 18, 2020, p. 913-921. ... Dankar, Fida K. ; Gergely, Marton ; Malin, Bradley et al. / Dynamic- ...

Dynamic-informed consent: A potential solution for ethical dilemmas ...

Semantic Scholar extracted view of "Dynamic-informed consent: A potential solution for ethical dilemmas in population sequencing initiatives" by F. Dankar ...

Medical research with human samples and health data—why ...

Informed consent is a central principle of medical research ethics. Traditionally, consent is required to respect the autonomy of human research subjects.

Dynamic-informed consent: A potential solution for ethical dilemmas ...

One particular strategy that claims to be fully informed and to continuously engage participants is called “dynamic consent”. Dynamic consent is based on a ...

Ethical challenges in study design and informed consent for health ...

Special attention should be given to the social and political dynamics that influence the “gate-keeping” function of review committees. • Collaborative research ...

Reflections on dynamic consent in biomedical research: the story so ...

Dynamic consent (DC) was originally developed in response to challenges to the informed consent process presented by participants agreeing ...

Dynamic consent, communication and return of results in large-scale ...

We conducted a survey study to inquire how research participants evaluate the elements of consent, information provision, communication and return of results ...

Dynamic consent - Wikipedia

These issues include how to obtain informed consent in a rapidly-changing environment; growing expectations that people should know how their data is being used ...