Experiences of Family Members and Caregivers of Epilepsy Care ...

The involvement of family members is crucial for enhancing the overall well-being and quality of life of individuals living with epilepsy.

This study revealed that although family members and caregivers are essential in patient care, they need more support and care from health ...

(PDF) It Goes Beyond Anxiety: Experiences of Family Members and ...

From these two themes, four subthemes emerged: Epileptic seizure practice and treatment, as well as epilepsy knowledge and counselling and ...

The experiences of caregivers of children with epilepsy - Frontiers

Studies have shown that more than half of family members of patients with epilepsy experience stigma, and stigma negatively impacts caregivers' mental ...

Caregivers' experiences in the management of children with epilepsy

The most difficult aspects of parenting a child with epilepsy include changing roles within the family, the unpredictable nature of seizures, and the lack of ...

Epilepsy for Parents and Caregivers

Many parents, family and caregivers have similar concerns with the care they give to people with epilepsy. When the person you care for is a child, these ...

[Article Metrics] Family members & caregiver experience: epilepsy ...

It Goes Beyond Anxiety: Experiences of Family Members and Caregivers of Epilepsy Care and Support ... The opinions expressed in all articles published here are ...

Caregivers' Experiences in the Management of Children with Epilepsy

Most responsibilities for illness care fall on caregivers; therefore, they are the most affected family members. Numerous quantitative ...

Lived experiences of caregivers of persons with epilepsy attending ...

Psychological burden was discussed under; effects of caring for persons afflicted with epilepsy in day to day life, interference with personal ...

Emotional experiences of family caregivers of children with Dravet ...

Dravet syndrome families consequently still strug- gle for support, relief, and mental health care. For example, while genetic testing for ...

Caring for a family member with intellectual disability and epilepsy

Just under one third of respondents spoke of the difficulties they experienced in managing their family member's epilepsy and detailed the pervasive impact of ...

Epilepsy and the family: Caregiver stress and sibl | Newswise

These multiple effects often result in stress and anxiety. A perfect storm for traumatic stress. Caring for someone with uncontrolled epilepsy ...

Exploration of health care providers' knowledge-based ... - Frontiers

Furthermore, this study showed that developing a support structure for family members and caregivers is crucial to enhancing their quality of ...

Resources Available for Caregivers - Epilepsy Foundation

There are many different epilepsy-related resources for people caring for loved ones with epilepsy. Find resources from our 24/7 helpline to support groups.

Lived experiences of caregivers of persons with epilepsy attending ...

Introduction: Epilepsy has been found to affect caregivers' quality of life, lifestyle, psychological health, social well-being, ...

The experiences of caregivers of children with epilepsy: A meta ...

Conclusion Caregivers beared a heavy burden of care and psychological burden. Despite the adoption of different coping strategies, their ...

The Needs And Problems In Epilepsy Caregiving: A Qualitative ...

consideration and care from other family members were also factors in family ... Caring for family members with stroke: Chinese family caregivers' experiences.

A Caregiver's Perspective on the Role of Telehealth - UCB-USA.com

... epilepsy care. Her story speaks to the challenges many caregivers ... You never want to see one of your family members struggling, so that has ...

Caring for Children with Dravet Syndrome: Exploring the Daily ...

However, an earlier study on the emotional experiences of Polish DS carers showed that while 73.4% of parents felt overwhelmed by the caregiving ...

Caregivers: Self Care isn't Selfish - Epilepsy Alliance America

Emotional Health: Caregivers may experience a range of emotions, including stress, anxiety, guilt, and even grief. It's crucial to acknowledge these feelings ...