Huntington's Disease Caregivers

It can mean that you are symptomatic or that you are at risk for the disease. It can also mean that you are a caregiver for a person with HD. Caregiving is an ...

Huntington's Disease - Family Caregiver Alliance

Both online and in-person support groups are available for individuals with HD, their family caregivers, and for those living at risk. Counseling also may be ...

Caring for Someone With Huntington's Disease

Being the primary caregiver for anyone with a disability or medical condition can be a huge undertaking. You need to consider their emotional, physical and ...

Huntington's Disease Caregivers: You're Not Alone (article)

Go to the Family Caregiver Alliance Family Caregiver Services by State or use the National Eldercare Locator. Check with your local Center for Independent ...

Caring for Someone With Huntington's Disease - Verywell Health

Caring for someone with Huntington's disease involves emotional, physical, and practical needs of your loved one—as well as taking care of ...

A Caregiver Guide for HD Families

The Caregiver Guide for HD Families includes discussion on the benefits of physical and occupational therapy and nutrition along the continuum of disease ...

Huntington's Disease: A Caregiver's Guide

Huntington's disease affects the afflicted person's ability to walk, talk, think and reason. Its impact is felt in three major areas – emotional, physical and ...

Caring for a Loved One with Huntington's Disease

You may find new ways to help your loved one manage and cope with the disease, as well as advice on how to balance the many responsibilities of being a ...

The emotional experiences of family carers in Huntington disease

This paper is a report of a study conducted to examine the emotional experience of caregiving by family carers of people with Huntington disease

Resources to Support Young & Adult Caregivers

Many family members and friends of those who have HD find themselves providing care in various ways. Caregiving tasks can include helping the person with HD eat ...

A Caregiver's Handbook for Advanced Stage Huntington Disease

You, the caregiver, are a very special person too. Whether you are in a long-term care facility or at home, the challenges of caring for this person with HD may ...

Caring for Someone with Huntington's Disease: What to Do and ...

In this article, we'll break down the complexities of caring for someone with Huntington's disease, including the stages and some of the daily needs you'll ...

A prospective longitudinal study of patient/caregiver pairs

Our results revealed the dynamics of caregiver burden over time in Huntington's disease, combining the stage of the disease, the severity of the patients' ...

The Impact of Huntington Disease on Family Carers: a Literature ...

Caring for a person with chronic disease often rests on the patient's family. Nevertheless, most studies on the needs, quality of life and caregiver burden ...

Huntington's Disease Caregiver Support | More Than HD

Becoming a caregiver for someone with HD is a role that comes with its own challenges and rewards. Caregiving is an act of courage, love, and sacrifice.

Facilitators and barriers in caring for a person with Huntington's ...

Getting enough rest, a daily structure, and a clear schedule helps in caring for a person with HD. It is also important to schedule moments of rest during the ...

Caregiver & Community Resources - UC Davis Huntington's ...

Neurology Clinic: 916-734-3588 ; HD Helpline/Social Worker: 916-734-6277 ; Research Study Coordinator: 916-734-7706 ; Huntington's Disease Clinic address: 3160 ...

Huntington's caregivers voice need for online and in-person support

Huntington's disease comes with considerable caregiver burden ... Huntington's progressive nature means that over time, patients lose physical and ...

Huntington's Disease Can Surprise Caregivers - Caring for the Ages

Trone, was a world of difference. Cognitive and Psychiatric Change. Huntington's disease (HD) is a hereditary neurodegenerative disorder caused by the abnormal ...

Balancing needs as a family caregiver in Huntington's disease: a ...

The family caregivers of patients with HD cope by regulating information about the disease, and balancing their own needs with the need to care ...