Information and informed consent in a longitudinal screening ...

This empirical study explores participants' perceptions of information and understanding of their children's and their own involvement in a longitudinal ...

The answer must be 'no' in the sense that the basic information needed for satisfactory informed consents should not be any different. However, ...

(PDF) Information and informed consent in a longitudinal screening ...

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Information and informed consent in a longitudinal screening ...

Information and informed consent in a longitudinal screening involving children: A questionnaire survey · Authors: · Year: · Description · Share · Related ...

Information and informed consent in a longitudinal screening ...

Request PDF | Information and informed consent in a longitudinal screening involving children: a questionnaire survey | This empirical study ...

How to handle informed consent in longitudinal studies when ...

Empirical findings from a Swedish longitudinal screening study show that many of the research subjects had a limited understanding of the study. Nevertheless ...

Information and informed consent in a longitudinal screening ...

Information and informed consent in a longitudinal screening involving children: a questionnaire survey. dc.creator, Stolt, Ulrica Gustafsson, en. dc.creator ...

Information and informed consent in a longitudinal screening ...

Information and informed consent in a longitudinal screening involving children: a questionnaire survey · Creator · Bibliographic Citation · Permanent Link · Date.

Adding dynamic consent to a longitudinal cohort study

Under broad consent individuals can agree to the use of their samples and associated data for future unknown research projects, reassured that ...

Informed Consent FAQs - HHS.gov

The informed consent process involves three key features: (1) disclosing to potential research subjects information needed to make an informed decision; (2) ...

Confidentiality & Informed Consent - National Longitudinal Surveys

The NLS program has established set procedures for ensuring respondent confidentiality and obtaining informed consent.These procedures comply with Federal ...

Dilemmas of Ethics in Practice in Longitudinal Health Research

Results: Residents requested the reporting back of personal screening test results from research studies, and raised informed consent issues. Researchers ...

(PDF) How to handle informed consent in longitudinal studies when ...

Information and informed consent in a longitudinal screening involving children: a questionnaire survey. Eur J Hum Genet 2004;13:376–83. 6 Brock D. Life and ...

Personalized and longitudinal electronic informed consent in clinical ...

The use of electronic informed consent to inform research participants and to obtain their consent electronically has the potential to improve ...

Ethical considerations in longitudinal studies of human infants

Consent should be conceptualized as continued processes in longitudinal research. ... informed consent. Researchers have questioned ... data due to problems that ...

4 Informed Consent - The National Academies Press

Cargill identified two central challenges unique to longitudinal studies: even if people understand the complex information about consent, the informational ...

Ethical issues in comparative and longitudinal research with children -

In this blog post, you can read about dilemmas of informed consent associated with longitudinal research, the importance of cognitive testing, ...

Self-Assessed Understanding as a Tool for Evaluating Consent - jstor

Information and informed consent in a longitudinal screening involving children: a questionnaire survey. Eur J Hum Genet. 2005;13:376-83. 10. Joffe S, Weeks ...

Children, Longitudinal Studies, and Informed Consent - SpringerLink

Some of the questions raised are: When is it right to include children in longitudinal studies? Is an approval from the child needed? How should information to ...

Confidentiality & Informed Consent - National Longitudinal Surveys

The NLS program has established set procedures for ensuring respondent confidentiality and obtaining informed consent. These procedures comply with Federal ...