Learning from parents' experiences of palliative care for their child

Learning from parents' experiences of palliative care for their child · Background to the Research Around 4,500 infants and children die in England and Wales ...

Understanding parent experiences of end-of-life care for children

For parents of these children this is an intensely emotional and painful time through which they will need support. There is a lack of synthesised research ...

Findings indicated that parents described considerable inequalities in access to, and provision of, palliative care, particularly 24/7 care, which was dependent ...

Exploring Parent Experiences With Early Palliative Care Practices in ...

In experiences with care planning, parents described learning to advocate, having a spectator versus participant role, and experiencing care ...

The experiences of parents of children in pediatric palliative care

The mothers said that they and their other children experience sadness, sorrow, fear, anxiety, and fear of death the children in the pediatric palliative care ...

Understanding parent experiences of end-of-life care for children

For parents of these children this is an intensely emotional and painful time through which they will need support. There is a lack of ...

Bereaved parents' perspectives on their child's end-of-life care

Paediatric Palliative Care (PPC) focuses on ensuring the best possible quality of life for the child and his/her family by extending beyond ...

Parents' Experiences of Pediatric Palliative Care and the Impact on ...

Parents' most often reported physical and psychological symptoms of their child during the palliative phase were fatigue (75%), pain (74%), anxiety to be alone ...

Parents' Experiences in Caring for their Child with Cancer Under ...

Conclusion This study shows that during palliative care, parents cannot be separated from their relationship with God. Therefore, nurses are ...

Parents' Experiences of Pediatric Palliative Care and the Impact on ...

Parents' most often reported physical and psychological symptoms of their child during the palliative phase were fatigue (75%), pain (74%), anxiety to be alone ...

When a Child Dies: Parents' Experiences of Palliative Care—An ...

Health professionals need education to provide high-quality pediatric palliative care. They especially need training concerning existential issues, and further ...

Parents' experiences of paediatric palliative care in the community ...

In all, 11 parents of children with different life-limiting illnesses were interviewed after the child's death using a semi-structured interview guideline. Data ...

Parents' experiences of palliative care decision‐making in neonatal ...

The sixth theme describes the medical aspects of the parental experience from pregnancy to the death of their baby. It covers a range of ...

Still Hoping for a Miracle: Parents' Experiences in Caring for their ...

Qualified palliative care can increase the quality of life for children and their families. Although on the reality, palliative care also still have despair,[7] ...

Family experiences with palliative care for children at home

Communication between the parents, the provision of available information about the child's condition, the parents' relationship with the health ...

(PDF) What does 'good' palliative care look like for children and ...

Parents were recruited via four children's hospices, one hospital, and via social media. Good palliative care is co-led and co-planned with trusted ...

Parental experiences and coping strategies when caring for a child ...

To align healthcare professionals' support with the needs of parents, a clear understanding of prominent experiences and main coping strategies ...

Family experiences with palliative care for children at home

Most families preferred staying at home since it made it easier to maintain a normal family life, was less stressful for the sick child, and meant that ...

End‐of‐life palliative home care for children with cancer: A ...

Three main themes emerged from exploring the parents' experiences of caring for their dying child at home: (1) involvement enabling a sense of ...

Parents' experiences of pediatric palliative care and the impact on ...

Context: Approximately 25% of children diagnosed with cancer eventually die. Losing a child puts parents at increased risk for developing psychological ...