Patient Groups
Patient Advocate Foundation: Home
Patient Advocate Foundation Receives Patient Advocacy RISE Award - Patient Advocate Foundation Receives Patient Advocacy RISE Award Alan Balch. PhD (left) ...
What are patient advocacy groups? - Beacon for rare diseases
Patient advocacy groups provide the understanding, support and medical information needed to make informed decisions about one's health and treatment options.
Patient Organizations | National Institute of Neurological Disorders ...
National nonprofit organization dedicated to accelerating efforts toward a cure for MS. Researchers have access to online resources and the ACP Repository of ...
Patient Groups - Hematology.org
This website provides a wide variety of information for patients and health professionals on the prevention, causes, and treatment of all types of cancer.
Patient Organizations - National Organization for Rare Disorders
Find a Rare Disease Patient Organization · “22q and You” Center. Email: [email protected] · 11q Research and Resource Group. Phone: 404-428-8440 Email: ...
Patient Advocacy Groups | Rare Diseases Clinical Research Network
Patient Advocacy Groups (PAGs) are organizations that promote the needs and priorities of patients. One feature of the RDCRN is the direct involvement of ...
Advocacy and Support Groups - NCCN
Patient advocacy groups help patients, their families, and their caregivers navigate the cancer landscape. These groups work to ensure patients receive ...
Starting a Patient Group - Toolkit - National Institutes of Health (NIH)
The voice of a patient group offers clinicians, researchers, and industry a more diverse perspective and has a greater impact.
Patient Advocacy Organizations - ACCC Cancer
Below is a list of key national oncology patient advocacy groups dedicated to promoting excellence and quality cancer care.
For Patient Organizations - National Organization for Rare Disorders
We provide organizations and leaders with guidance, templates, resources and opportunities to grow their organization's impact and footprint.
Reach out to the Patient Advocate Foundation. The Foundation is a nonprofit organization. It helps people with chronic or life-threatening ...
ACS Patient Programs and Services - American Cancer Society
Population Science · Surveillance & Health Equity Science. Research Tools ... ACS Patient Programs and Services. The American Cancer Society offers ...
Patient Group Engagement - CTTI
CTTI's recommendations provide an effective framework for sponsors and patient groups to engage at every stage of the process.
Partnering with patient groups
Partnering with patient groups. Working with patient advocacy groups (PAGs) deepens our understanding of patients and their needs. This ...
Patient Advocacy Groups | Parexel
Scaling the power of patient advocacy through long-term partnerships. Parexel is dedicated to developing mutually beneficial, long-term relationships with ...
Patient Advisory Groups | American Lung Association
The patient advisors work closely with our Airways Clinical Research Centers network to help guide studies based on patient priorities, provide ...
Patient organisations - Orphanet
Orphanet provides information on patient organisations, umbrella organisations and alliances dedicated to one particular rare disease or to a ...
For Education, Support, and Assistance, Patient Advocacy Groups ...
A medical diagnosis can raise countless questions and concerns. One way that patients can empower themselves with knowledge and surround themselves with ...
Global Patient Support Groups - MDS Foundation
The MDS Foundation, Inc. (MDSF) has compiled a list of US and international MDS-specific support groups, as well as support groups that target multiple blood ...
Types of patient organisations - European Patients' Forum
Disease-specific, local or regional patient organisations are very close to the community they represent. They have practical knowledge of disease-specific ...