The lived experience of Huntington's disease

The lived experience of Huntington's disease: A phenomenological ...

The purpose of this article is to explore the intersections between genes, the body and the lived experience of a genetic disease.

L10 Huntington's illness: the lived experience of Huntington's disease

Results The results of the ethnographic study showed that the lived experience of HD was centred on family care-giving for the sick individual, stigmatisation, ...

Young People Living at Risk of Huntington's Disease - PubMed

Young people in families with HD endure considerable emotional, social and practical burden secondary to having an AFM and being at risk themselves.

Huntington's Disease: The Pryce Sisters' Story

Huntington's is a family disease and experience. No diagnosis is singular to one person — it permeates the family. Kimberly Pryce. Living Life and Helping ...

Experiences of young people growing up in a family with ...

Huntington's disease is a genetic neurodegenerative condition with wide physical and psychological impacts. Children of a parent with the ...

Beyond the clinical context: the process of losing oneself living with ...

People with Huntington's disease (HD) have increased functional and cognitive dependence. While numerous clinical, genetic, and therapeutic ...

The Lived Experiences of Depression in Huntington's Disease

The aim of this study was to investigate the lived experiences of depression in people with the CAG expansion for HD using qualitative methods.

The Lived Experiences of Depression in Huntington's Disease

The aim of this study was to investigate the lived experiences of depression in people with the CAG expansion for HD using qualitative methods.

Personal Stories - Rare Voices Australia

This is a story of my family's experience with Huntington's disease (HD). I am the oldest child with three siblings who were all diagnosed with HD at around the ...

Huntington's disease: MedlinePlus Genetics

People with this disorder also experience ... Huntington's disease usually live about 15 to 20 years after signs and symptoms begin.

The lived experience of Huntington's disease: A phenomenological ...

Following phenomenologist Drew Leder's outline of the divergence between the invisible and the visible features of the body, the analysis of the empirical ...

The Lived Experiences of Depression in Huntington's Disease

Abstract. BACKGROUND: Depression is a common neuropsychiatric syndrome in Huntington's disease (HD) and has debilitating consequences, including poorer sleep, ...

F06 'Where do we go from here?': A meta-synthesis of qualitative ...

There are methodological limitations in current literature such that holistic impact of the disease and experiences of people with HD late stages were not well ...

More than Just a Brain Disorder: A Five-Point Manifesto for ... - MDPI

In his seminal 1872 article On Chorea, George Huntington explained that “as the disease progresses, the mind becomes more or less impaired, in ...

Science and Suffering: Genetics and the Lived Experience of Illness

KEYWORDS: genetics; genetic testing; genetic responsibility; illness experience;. Huntington Disease. The science of genetics1 has the potential ...

Young People Living at Risk of Huntington's Disease - ResearchGate

Conclusions: Young people in families with HD endure considerable emotional, social and practical burden secondary to having an AFM and being at risk themselves ...

Dilemmas when talking about Huntington's disease: A qualitative ...

A relatively small but significant body of research has reported on the lived experiences of young people in families with HD, showing that they ...

Science and Suffering: Genetics and the Lived Experience of Illness ...

... the lived-experience of illness in Huntington Disease (HD). Given the breadth of genetics, I focus on four aspects of genetic discourse and technology in ...

The meaning of apathy in Huntington's disease: A qualitative study ...

The experience of apathy expressed in this study appeared to mirror caregivers' experience of HD in general – never discussed, hidden from view ...

The lived experience of Huntington's disease: A phenomenological ...

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