Understanding parent experiences of end|of|life care for children

Understanding parent experiences of end-of-life care for children

Services delivering end-of-life care for children need to recognise the importance for parents of being able to fulfil their parental role and consider how ...

Understanding parent experiences of end-of-life care for children

This review focuses on parental experiences of end-of-life care, which is usually defined as support for people who are in the last years or months of their ...

Understanding parent experiences of end-of-life care for children

There were two overarching themes: parents of children receiving end-of-life care experienced a profound need to fulfil the parental role; and care of the ...

Parent Perspectives on Care of Their Child at the End of Life

... understanding of this experience, different methods were used. In one study, concerns of parents with a child who had incurable cancers were explored using ...

Parental experiences of end of life care decision-making for children ...

Results Five interconnected themes were identified related to end of life care decision-making:(1) parents have significant knowledge and experiences that ...

Bereaved parents' perspectives on their child's end-of-life care

A deep understanding of the perspectives and needs of parents going through the devastating event of losing a child is important and a ...

Learning from parents' experiences of palliative care for their child

Background to the Research Palliative care is an important element of the care that these children need and focuses on improving quality of life for children ...

Parent experience of advance care planning: reconstructing meaning

Objectives Parents have unique experience of caring for their child with a life-limiting illness and significant insight into the experience ...

Parents' Experiences of Pediatric Palliative Care and the Impact on ...

Parents' most often reported physical and psychological symptoms of their child during the palliative phase were fatigue (75%), pain (74%), anxiety to be alone ...

Parent Priorities in End-of-Life Care for Children With Cancer

Most parents reported that the study offered at least some benefit to them, suggesting that it may be feasible in forthcoming research to ...

Development of the Parental Experience with Care for Children with ...

Parent-Reported Experience Measures (PaREMs) are process measures that help us to understand “what” and “how” care activities occurred from the ...

Parental experiences and coping strategies when caring for a child ...

Parenting and providing extensive care to a child with a life-limiting or life-threatening disease while being aware of the future loss of ...

The experiences of parents of children in pediatric palliative care

Palliative care seeks to improve the quality of life of patients and parents dealing with life-threatening illnesses by preventing and reducing physical, ...

End‐of‐life palliative home care for children with cancer: A ...

Three main themes emerged from exploring the parents' experiences of caring for their dying child at home: (1) involvement enabling a sense of ...

What does 'good' palliative care look like for children and young ...

Parents were recruited via four children's hospices, one hospital, and via social media. Good palliative care is co-led and co-planned with ...

Parents' experiences of palliative care decision‐making in neonatal ...

Today, most deaths that occur in the Neonatal Intensive Care Unit (NICU) result from withholding or withdrawing life-sustaining treatments.

Understanding parent experiences of end-of-life care for children

Understanding parent experiences of end-of-life care for children: a systematic review and qualitative evidence synthesis ; Research output: ; Contribution to ...

Parents' Experiences of Pediatric Palliative Care and the Impact on ...

It has been shown that a high level of continuity of care at the end of the child's life is associated with less long-term grief (van der Geest et al. 2014; ...

Learning from parents' experiences of palliative care for their child

Findings demonstrate parents valued integrated, responsive, flexible palliative care, which encompassed the whole family. This has implications for informing ...

Parental Knowledge and Opinions on Palliative Care for Children

... understanding of palliative care among parents of pediatric patients at a single academic medical. ... care knowledge, beliefs and experiences ...