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Use of Publicly Available OR Identifiable Private Sources of ...


Use of Publicly Available OR Identifiable Private Sources of ...

Research involving publicly available data sets would not require IRB review – no application is required – as long as:

Category 4 - Secondary Use of Data - Office of Research

The identifiable private information or identifiable biospecimens are publicly available;; Information, which may include information about biospecimens, is ...

Coded Private Information or Specimens Use in Research ...

Under the definition of human subject at 45 CFR 46.102(f), obtaining identifiable private information or identifiable specimens for research ...

Differentiating “Public” and “Private” Internet Spaces in IRB Review

According to a Common Rule exemption criteria, “research uses of identifiable private information” (including information found online) are ...

Guidance on Secondary Analysis of Existing Data Sets - UConn OVPR

Public use data sets are prepared with the intent of making them available for the public. The data available to the public are not individually identifiable ...

Research Using Publicly Available Data - Johns Hopkins Medicine

Under the Revised DHHS Common Rule, research that includes access to and/or use of identifiable “publicly available” datasets or biospecimens may qualify for ...

Use of Publicly Available Datasets - UMass Dartmouth

Data in the electronic medical record. · Social media data labeled as "private" by the data owner, or not readily available without permission of ...

Coded Private Information or Biospecimens Used in Research

For the purposes of this document, the term “secondary research” refers to reusing information and biospecimens that are collected for some ...

Can I Use Publicly Available Data for Research or Projects Without ...

Publicly available data can include a wide range of information, such as government datasets, publicly shared research data, research published ...

Understanding Identifiable Data | IRB Blog | Institutional Review Board

Identifiable data is any information (personal or indirect) that can link a participant to a research study.

Research Repositories, Databases, and the HIPAA Privacy Rule

If the information is not de-identified, subsequent uses and disclosures of PHI from databases and repositories held by covered entities ...

Research Terminology | HRPP/IRB Washington State University

Private information must be individually identifiable (i.e., the identity of the subject is or may readily be ascertained by the investigator or associated with ...

FAQs and Vignettes | NSF - National Science Foundation

IF you collect information on individually identified participants from publicly available sources, the project may be in the exempt category as long as that ...

Secondary Research with Data and/or Specimens - Pitt HRPO

Exempt Criteria 45 CFR 46.104(d)(4) Secondary research for which consent is not required: Secondary research uses of identifiable private information or ...

IRB Pre-Approved Publicly Available, De-Identified Data Sources

The use of data from the following list of IRB approved public data sets is not considered human subject research as long as the following two criteria are met.

Publicly Available Personal Information - JoinDeleteMe

Publicly available personal information is data about an individual that the general public can legally access without restrictions. This type of information is ...

De-identifying Protected Health Information Under the Privacy Rule

PHI may be used and disclosed for research without an Authorization in limited circumstances: Under a waiver of the Authorization requirement, as a limited data ...

DISCLAIMER: This document has not been updated to reflect ...

Use of non-publicly available data when members of the research team or their collaborators have access to and plan to use private identifiable ...

Public vs. Nonpublic Data | Stanford Law Review

The use of third-party auditors is one approach for ensuring that administrative safeguards effectively prevent privacy attacks, but without a ...

IRB FAQ What is secondary research, and does it require IRB review ...

an investigator obtains identifiable private information for research purposes. ... are prepared with the intent of making them publicly available. The data ...