- Working Group on MedTech for Rare Diseases🔍
- Task Forces & Working Groups🔍
- Join the new Working Group on MedTech for Rare Diseases ...🔍
- Orphanet Journal of Rare Diseases series looking for authors on ...🔍
- Dr. Anneliene Jonker 🔍
- Lessons learned from the RE🔍
- Recommendations from the IRDiRC Working Group on ...🔍
- IRDiRC Call for Experts🔍
Working Group on MedTech for Rare Diseases
Working Group on MedTech for Rare Diseases - IRDiRC
The Working Group will primarily focus on devices used for either the treatment of rare diseases, such as implants, or devices used to support physical ...
Task Forces & Working Groups - IRDiRC
The IRDiRC Task Forces are created to tackle specific topics within rare diseases research proposed by the Constituent and/or Scientific Committees.
Join the new Working Group on MedTech for Rare Diseases ...
Join the new Working Group on MedTech for Rare Diseases stablished by IRDiRC together with the University of Twente! · Interested candidates can ...
EJP RD: New IRDiRC Working Group on MedTech - ERN ITHACA
IRDiRC's Therapies Scientific Committee (TSC) & Interdisciplinary Scientific Committee (ISC), alongside with the University of Twente are ...
Orphanet Journal of Rare Diseases series looking for authors on ...
IRDiRC is proud to announce that, as one of the outcomes of the MedTech for Rare Diseases Working Group led by IRDiRC members Anneliene Jonker and Marc ...
Dr. Anneliene Jonker (IRDiRC) interviewed for article on medical ...
The article, titled “Medical devices for rare diseases: the unmet need”, presents the goals of the IRDiRC Working Group on MedTech for Rare Diseases, the ...
Lessons learned from the RE(ACT) Conference on Medical Devices ...
All activities of the Working Group were sponsored by the International Rare Disease Research Consortium and the University of Twente. Speakers ...
Recommendations from the IRDiRC Working Group on ...
In February 2017, the International Rare Diseases Research Consortium (IRDiRC) defined it's vision and goals to achieve by the year 2027: Enable ...
IRDiRC Call for Experts - MedTech - Endo-ERN
The Working Group will primarily focus on devices used for either the treatment of rare diseases, such as implants, and devices used to support physical ...
International Initiative Tackles Paucity Of Rare Disease Devices
An orphan device working group is calling on medtech experts to pen scientific journal articles. · New to Medtech Insight? · Pediatric Cardiologists Told To ...
Rare Diseases Clinical Research Network (RDCRN)
Through a network of consortia, scientists from multiple disciplines at hundreds of clinical sites around the world work in partnership with patients and ...
Rare Disease Advisory Councils
A Rare Disease Advisory Council (RDAC) acts as an advisory body that gives the rare disease community a stronger voice in state government.
Global Collaborations Tools - Rare Diseases International
The Global Access Working was launched by RDI and the International Rare Diseases Research Consortium (IRDiRC) to improve access to rare disease treatments, ...
The HTAi Rare Diseases Interest Group (RDIG) is a service to members who have interest in HTA of health technologies for rare diseases. This Interest Group ...
Working Group: Rare diseases and the battle to define unmet ...
Working Group: Rare diseases and the battle to define unmet medical needs ... Our roundtable of EU and national policymakers, industry experts and patients will ...
Corporate Council - National Organization for Rare Disorders
The NORD Corporate Council is composed of a select group of leading companies committed to helping people with rare diseases.
Medical devices for rare diseases: the unmet need | Issue 48
Patients with rare diseases often lack medical devices suitable for their condition. A working group from The International Rare Disease ...
New York State Rare Disease Workgroup
The purpose of the workgroup is to identify best practices that could improve the awareness of rare diseases and referral of people with potential rare diseases ...
The Rare Cancers Working Group (RCWG), 36 partner strong multi-stakeholder partnership, founded in 2008 and coordinated by the European Society for Medical ...
Rare Diseases Working Group - Alliance for Patient Access
AfPA's Rare Diseases Working Group is a network of policy-minded health care providers who advocate for patient-centered care.